Trysten’s story of epilepsy begins with a diagnosis of Grand Mal-Tonic Clonic Seizures and a heart condition, Sinus Arrhythmia, at age 12 in August 2013 while visiting family in Huntsville, Texas. After his diagnosis, he found that having epilepsy was not easy to talk about with others which left him feeling alone and excluded. After spending three weeks in the hospital and being told to hide his condition to keep from being held back in life, he and his mother decided it was time to make a difference by raising awareness. It was time to talk about it.
In February 2014, Trysten became one of the co-founders of the Galveston County Epilepsy Awareness Support Group, in partnership with the Epilepsy Foundation Texas, Houston/Dallas-Fort Worth/West Texas. The group has more than 100 members to date. Trysten realized he is not alone, he is 1 in 26.
By October of that same year, at age 13, he established the UTMB Epilepsy Fund at the University of Texas Medical Branch in Galveston, Texas. This fund supports Dr. Todd Masel’s Epilepsy Program in the Department of Neurology. Trysten hopes to someday see Galveston County build a Pediatric Epilepsy Monitoring Unit so that children like him do not have to travel outside the county for this service.
With November being “National Epilepsy Awareness Month”, he worked with the city of Galveston on a 2014 proclamation from the mayor to recognize this special month of awareness.
As an advocate of the Epilepsy Foundation Texas - Houston/Dallas-Fort Worth/West Texas, Trysten has delivered 30 presentations since his diagnosis through his Boy Scout Troop 192 - Galveston on First Aid in Epilepsy, with his largest crowd to date being 66 Rotary Club members.
Visit him at Epilepsy Voyages
Check out this great video of Trysten talking about his journey and the how CBD is helping him in his battle against epilepsy
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